The Heartbreak Of Losing A Child To An Oftentimes Fatal Disease

Losing a child is one of the worst experiences thatcancer were at first remonstrated for their vice
any human being can suffer. We all know that our lifewhich caused their condition. And we all know how
has to come to an end eventually and we mourn theAIDS victims were reviled in the 80s when first we
passing of our parents and elderly aunts and uncles.heard of this devastating disease. Eventually,
As heartbreaking as this is, that is the life cycle, thathowever, a collective common sense took over and
is how it is supposed to be. We are not supposed towe realized that these people were victims and
survive our child.deserved compassion and understanding.
To lose a child is beyond cruel. It goes against all ofI look forward to the day when the people who
our expectations of what life is supposed to be, howsuffer from the disease that killed my son, will be
our lives are supposed to play out. It shatters ouraccorded the same understanding and compassion as
vision of the fairy tale existence that has beenthose other victims. As I stated earlier, my son
spoon-fed us since early childhood.developed his disease at the tender age of 17, when
So when a beloved child dies, the fairy tale turns intohe was on the very brink of manhood, yet still a
a macabre nightmare, only this nightmare pervadeschild, exploring, experimenting, trying to find his way.
our minds around the clock. There is no release fromThe institutions of which I write, are in reality, rehab
the tortured visions. Sleep only brings us morefacilities. You see, my son died of the disease of
torment, where our mind plays horrific games and weaddiction! Yes, addiction is a proven brain disease. The
have no control over what floats in and out of ourdrugs change your brain's chemistry. What starts out
heads.as a lark, or a dare, or a curiosity or a way to
Finally we awake with sudden relief that theself-medicate some inner turmoil, emotional pain or
nightmare is over, only to realize instantaneously thatsome form of mental illness, giving the person a
the nightmare was nothing more than a really baddeceptive sense of euphoria, soon gives way to
dream and that the real nightmare, the real torture,despair, and if they're the unluckiest of the unlucky,
the realization that this is really real, will rear its uglyto full-blown addiction.
head and keep us company all day and into the night.There is no turning back. The Addiction Monster now
We can't yearn for sweet sleep to escape ourhas them in its clutches and it is a formidable foe,
heartache because there is no surcease from thisstronger than any parental admonitions, or books or
sorrow. Nighttime brings nightmares and daytimeTV shows or TV public service announcements, and
brings something much worse. It brings reality. Amuch stronger than the hapless victim.
reality so horrible as to be almost incomprehensible.Most of us, well, let's face it, all of us make mistakes.
My husband and I went through a living nightmare forEvery single one of us makes many mistakes during
14 years as we helplessly watched our belovedour lifetime. Fortunately for us, most of our mistakes
youngest son die from an oftentimes fatal disease,will be short-lived, cause no long-term consequences,
quite often marked by vomiting, shaking,and we can learn and profit from them and go on
hallucinations, sunken in cheeks, and marathonabout our lives.
sleeping sessions, alternating with days ofAddiction does not afford us this second chance. It
sleeplessness. He contracted the disease when hecompletely takes over the victim's mind and body.
was 17, when he had the world by the tail and soWhen you look into the face of your addicted child,
much life in front of him, waiting to be enjoyed andyou're not really seeing him or her. You are merely
grabbed with youthful gusto.seeing a shell that resembles your child, but hidden
Our son had his own band. He played guitar. Actuallyinside is the Monster who is calling all the shots. As
he could play any musical instrument thrust into hismuch as your child tries to fight this monster, he
hands, from the flute, to the drums, even a dulcimer,doesn't have a chance. The Monster is strong and
to the guitar. He had natural talent.tenacious and unrelenting and lulls the child into the
Our son had the all-American good looks, the bufffalse hope that just one more hit will make them feel
physique honed from many years of surfing andbetter and then they can start fighting the Monster
working out with weights and running. His smile wouldagain. But it never works this way. The Monster will
knock your socks off. He was a Leo, exhibiting mostwin every time. Its strength is Herculean.
of the traits of that Zodiac sign including the charmIt's easy to cast aspersions on the addicted person,
and charisma that left the girls spellbound.to look down our noses at them, and to say that
He had a brilliant mind with an IQ of 150 and eventhey made their bed, let them lie in it. Would we say
wrote professionally for a brief time. During our son'sthis about the cancer victims? Although AIDS
illness, with its many remissions, he managed topatients still experience a certain amount of hostility
become an EMT, graduating first in his class, and thenand lack of understanding by the general public, their
on to become a Paramedic and then an RN. Hisplight is gradually becoming more understood.
ultimate goal was to be a physician. He would haveProgress is finally being made in this regard.
made an excellent one too, not only for his sharpNow it's time, actually way past time, for all of us to
mind but also because of his kindness andunderstand addiction. Addiction is not a conscious
compassion.choice. The experimentation usually begins in
There were so many times during the years that ourchildhood, before our brains are fully developed. We
son could not attend certain family functions due todon't have the tools to make smart decisions...but we
his illness. He couldn't get out of bed. He didn't eventhink we do. And that is our downfall. Children make
graduate from high school, having missed so manymistakes. That's a part of growing up. The lucky
days and because of the problems that his illnessones will be able to overcome these childhood
caused.mistakes and grow up and go on to lead happy,
From the time he was 17 until he passed away onproductive lives.
the night of December 1, 2002, at the age of 31, weAs my son used to tell me, "Mom, nobody wakes up
didn't get much sleep. We were always waiting forone day and decides to be an addict." I'd like to add
the phone call that would tell us that our son hadthat nobody wakes up one day and decides to be a
been taken to the hospital. We knew the diseasebereaved parent, yet it is thrust upon us with all the
was exacerbating and there was nothing that weweight of the world. We are victims too of our
could do. Still, you never really think it will happen. Youdrug-entrenched society.
are never prepared!As much as we bereaved parents suffer, and believe
We had him in and out of institutions that specializedme we suffer inconsolably, our children suffered 10
in his particular disease. We did everything humanlyfold. They never expected it to happen to them.
possible to save him. He also tried desperately toThey didn't know what they were up against. They
cure himself but all along he knew that it was a futiledidn't realize the searing pain they would cause us,
battle.the pain that would live with us every second of
We spent untold thousands and thousands of dollarsevery day.
on treatments because no insurance company wouldI miss my son with every fiber of my being. My only
pay for treatment for his type of disease. Had heconsolation is that he is no longer suffering. His pain
been a leper he would have been treated better.has ended. Ours endures.
There was a time, not too terribly long ago, whenFor more information on the disease of addiction, and
cancer was spoken of in hushed tones. People whoto read the stories by 40 parents who have lost a
got cancer were sometimes ashamed, as were theirchild to this insidious disease, please read I Am Your
relatives. Society placed a stigma on cancer victimsDisease (The Many Faces of Addiction). The book is
and their families. I am old enough to remember this.a compellingly honest depiction of addiction and will
Then along came AIDS. Another disease spoken of,open your eyes to the fact that good kids do drugs
in even more hushed tones than cancer.too!
People who smoked all their lives and contracted