| The Infectious Diseases Society of America's new | | | | with Autism have been found to have Lyme and |
| Lyme disease guidelines review panel will hold a one | | | | with treatment their symptoms improve. |
| day hearing on July 30 2009. This hearing is part of | | | | Dr Alan Macdonald a pathologist found borrelia in the |
| the antitrust settlement that the Connecticut | | | | umbilical chord and fetus and there is evidence to |
| Attorney General negotiated. On May 1st of 2008 | | | | support that it can be passed like syphilis to the |
| the Att. General announced this review, after | | | | unborn child even when the mother may have a sub |
| investigations of the previous panel members had | | | | clinical infection. |
| found significant conflicts of interest financial in | | | | Dr Macdonald also found DNA for borrelia in the |
| Insurance,Vaccine production and research. They | | | | Hypercampus of 7 out of 10 Alzheimer's brains. |
| were found to have excluded members from the | | | | Dr Judith Miklossy has done considerable research and |
| board who had a divergent point of view and had | | | | has also found DNA in the Hypercampus of brains. |
| excluded research articles that had a different view | | | | She has found spirochetes in blood CNS and brains of |
| whilst supporting their view by their own research. | | | | every single one of 14 Alzheimer's patients on |
| It's an unprecedented action - the first time a medical | | | | autopsy but not one of 16 control study. She |
| society has been investigated and forced to | | | | believes that treatment by antibiotics can significantly |
| re-examine its guidelines. | | | | relieve symptoms of Alzheimer's in many patients. |
| These guidelines are considered authoritative in | | | | CDC have recently acknowledged that Lyme Disease |
| countries throughout Europe including of course UK, | | | | is of epidemic proportions and has been meeting with |
| also Canada as well as America. Although as their | | | | many of the Lyme Charity Representatives. The |
| name suggests they are GUIDELINES they have | | | | actual figure is considered to be 10x those from |
| been used to refuse patients treatment and to take | | | | confirmed serological tests. In UK HPA figures last |
| disciplinary action against doctors who choose to | | | | year were c800 so multiply that by 10 and then |
| treat following alternative guidelines. | | | | realise many of us suffer ten, twenty years of illness |
| Alternative Guidelines are those written by | | | | before diagnosis and successful treatment, you |
| International Lyme and Associated diseases. They | | | | quickly start to realise it is a far greater problem in |
| believe that Lyme is not rare, is not simple to cure | | | | UK than is acknowledged by our NHS. |
| for many people, ongoing symptoms can be | | | | Dr Jemsek a Lyme Doctor in USA, interviewed |
| indicative of ongoing infection and that blood tests | | | | recently says that out of the top twenty illnesses |
| are unreliable. They have a considerable body of | | | | only 2 have a known cause H.Pylori causing stomach |
| research that supports their opinions which are being | | | | ulcers ( how many people underwent unnecessary |
| ignored by IDSA. | | | | surgery before it was realised that it was a bacterial |
| Sadly the new review board was convened with | | | | infection) and HIV. Dr Jemsek was at the forefront |
| members from the IDSA and excluded any doctor | | | | treating AIDS victims long before it was accepted |
| treating patients following ILADS guidelines so already | | | | world wide as an illness. He likens the denial of Lyme |
| there is a bias, including one member an ex president | | | | to the problems he faced in the early days of |
| of IDSA who has already spoken out publicly against | | | | treating AIDS patients. Lyme is of far greater |
| ILADS and in support of IDSA guidelines, before | | | | incidence than the case numbers of AIDS and West |
| even looking at the evidence. | | | | Nile virus added together according to CDC figures. |
| There have already been many representations | | | | Much of the above can be substantiated through links |
| made to the review board from 43 charities plus | | | | on the top right of my blog but I would be more |
| ILADS, Canada, a German speciality clinic and UK | | | | than happy to find further information if required. |
| Lyme disease Action Charity, that I am aware of. | | | | Not only are people going undiagnosed and untreated |
| In America 5 States have now passed legislation to | | | | but most importantly children are the most vulnerable. |
| protect their doctors, if they choose to treat | | | | See on my blog role Lewis Jeynes sad decline into |
| differently than IDSA guidelines. A bill is hoping to be | | | | such terrible debilitating ill health from a healthy two |
| presented at Congress this year. In the UK many | | | | year old toddling around. After three years of decline |
| politicians have been supporting the charity Lyme | | | | his family has finally had tests done in Germany that |
| Disease Action and asking questions in Parliament and | | | | confirm he has Lyme Disease, now they have to |
| writing to Health Secretary but each time they defer | | | | struggle to get NHS treatment and may even have |
| to the 'expert' at HPA who has written research with | | | | to go privately because of IDSA discredited guidelines |
| 2006 IDSA guidelines panel members and refuses to | | | | which are being treated as mandatory still throughout |
| open her mind to the research supporting ILADS | | | | the World. |
| guidelines. | | | | The documentary film Under our Skin is amazing, |
| Willy Burgdorfer the man who discovered the | | | | what might to the uninitiated seem over dramatic, to |
| organism to be of bacteriological origin is quoted 'The | | | | those of us who have suffered the devastating |
| controversy in Lyme disease research is a shameful | | | | effects of Lyme and in my case overcome them, I |
| affair. And I say that because the whole thing is | | | | can assure you it is an accurate portrayal. The trailer |
| politically tainted. Money goes to people who have, | | | | and many other clips can be seen on their website. |
| for the past 30 years, produced the same | | | | The Film is currently touring cinema's in the States |
| thing-nothing Serology has to be started from | | | | and is very well worth watching, even if you never |
| scratch with people who don't know beforehand the | | | | have connections to anyone with Lyme you should |
| results of their research.' | | | | see what is happening to your fellow citizens and |
| Research has found Borrelia (Lyme Disease) to be as | | | | with your Health care system. One day I would like |
| complex as TB and Leprosy and therefore difficult to | | | | to see it aired on National television and cinemas in |
| treat in it's later stages. It is a spyrochaetal organism | | | | UK. |
| similar but far more complex than syphilis and so like | | | | I have only read one Journalist's work who has in any |
| syphilis can affect every system and organ in the | | | | way got into this controversy Pam Weintraube, again |
| body, thus presenting with a multiple of symptoms, | | | | links on the right of my blog. Pam was a science |
| Arthritis, muscle weakness, neurological, heart block, | | | | journalist and herself husband and two boys suffered |
| meningitis, psychiatric the list is endless. | | | | many years of debilitating illness before being |
| One video link I watched from some years ago said | | | | diagnosed and treated. She used her skills as a |
| that 3 Lyme doctors in USA had between them | | | | science journalist to interview researchers and |
| treated 50000 patients. That number will be multiplied | | | | doctors as well as patients and patient advocacy |
| many times now. Dr Jones has treated 14000 children | | | | groups. Her book Cure Unknown is mind blowing, her |
| from every state in America and every country in | | | | articles in Psychology today of which there are many, |
| Europe. I am in touch through Eurolyme with 2036 | | | | need to be aired in every National newspaper and |
| patients struggling with their health and treatment | | | | not just in USA but especially in UK and also Canada. |
| mainly from UK but also from every country in | | | | One doctor whose young son had been seriously ill |
| Europe. | | | | with Lyme Disease recently said to me 'It is a medical |
| At Lyme Disease Action conference last year I | | | | disgrace', other doctors believe that it will eventually |
| listened to Dr Bransfield a psychiatrist who has | | | | have significant impact on the treatment of many |
| treated many patients with Lyme Disease, recently | | | | illnesses. |
| he and Dr Jones have been finding that some children | | | | |